The Give and Take of Self-Advocacy
I find myself met, again and again, with shallow characterizations about what migraine is (and is not) from people who’ve not experienced them. Some people think that migraines are ‘just headaches’,...
View ArticleAdvocating for Self-Care
What is an advocate if we don’t advocate for ourselves in addition to others? I’ve been a patient advocate for many years, and I’ve lived with chronic migraine for many more years... READ MORE
View ArticleHeadache on the Hill 2018 – How You Can Get Involved Now
On February 12 and 13, 2018, the Alliance for Headache Disorders Advocacy (AHDA) held its annual Headache on the Hill (HOH) in Washington, DC. In its 11th year, Headache on the Hill... READ MORE
View ArticleWhat Does It Mean To Be An Advocate?
Recently an online friend sent me a message asking for my advice about how to become an advocate for migraine disease. My answer to her: Sweetheart, you already are one. I went... READ MORE
View ArticleThe Migraine World Summit
There is less than one headache specialist for every 85,000 patients in the US. This number is similar or worse in other countries around the world. For the vast majority of us,... READ MORE
View ArticleMigraine World Summit 2018
Migraine World Summit, I participated in this event in 2017, and found it extremely interesting. I think it would be of great value to Migraine.com readers. 31 leading migraine experts, doctors and......
View ArticlePushing Harder in the Face of Advocacy Success
Sometimes, I forget I’m an advocate. More precisely, there are times I forget I need to advocate. For others, for my family, for myself. Surrounded by a supportive community Sometimes, when...
View ArticlePatient Input on CGRP Needed by May 8th
It’s time to rally the troops! Those who live with migraine disease have a chance to make an impact on the pricing and insurance coverage of the new CGRP inhibitor drugs. This is... READ MORE
View ArticleOut of My Head Documentary
At this year’s Headache on the Hill, migraine advocates had the opportunity to attend the premiere of the highly anticipated, “Out Of My Head” documentary. After Susanna Sytron’s daughter experienced a...
View ArticleWalking for Migraine: Virtually and Physically
How can counterintuitive behaviors help reduce migraine severity? Which will freeze faster, boiling water or room temperature water? The answer would seem to be the room temp water, right? Well, it turns…
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