Taking Migraine to Capitol Hill for HOH ’14: What Can YOU Do?
Again in 2014 I had the distinct pleasure of attending the annual Headache on the Hill lobbying event in Washington DC to advocate for important changes for patients living with Migraine and... READ MORE
View ArticleSpeak Out for Migraine & Social Security Disability Today
Many of you know first hand about the challenging process of applying for Social Security Disability benefits for Migraine. Improving this situation has been an active advocacy focus of the Alliance...
View ArticleHelp Migraine Research With a $1 Donation (Really!)
Having as many people as possible donate $1 each to the 36 Million Migraine campaign is vital to migraine research. This post is not a trick. I’m not going to draw you... READ MORE
View ArticleHot Wings for Headache
By now you are familiar with the ALS “ice bucket” fundraising and awareness campaign. People have been posting videos of themselves accepting the challenge, sharing facts about ALS, and then...
View ArticleMove over, Ice Bucket Challenge: We want to bring some attention to migraine!
As a longtime patient advocate, I applaud folks who are able to bring a lot of attention to those who deal with particular illnesses/conditions that mean a lot to them. That is... READ MORE
View ArticleHot Wings for Headaches – your questions answered
Monday I had the privilege of interviewing Dr. Dave Watson, director of the WVU Headache Center and originator of the Hot Wings for Headaches challenge. The Challenge has generated quite a bit of......
View ArticleHeadache on the Hill 2015
On Thurs, April 23rd the Alliance for Headache Disorders Advocacy (AHDA) gathered for its 8th Annual “Headache on the Hill,” (HOH). This was a chance for patients, advocates and even doctors to... READ...
View ArticleSupporting migraine research
Have you ever wanted to do something to directly impact headache science? Research is the foundation of good science. To discover more effective Migraine treatments, we must first understand what...
View ArticleMiles for Migraine 2015
Susan G. Komen has races all over the country for Breast Cancer Awareness. Avon sponsors a two-day walk to raise money for the same purpose. Last year the ALS society raised $115... READ MORE
View Article“Run” with me for migraine research
“Unless someone like you cares a whole awful lot, nothing is going to get better. It’s not.” Dr. Seuss, The Lorax The second annual Runnin’ for Research 5K takes place this Saturday,... READ MORE
View ArticleHeadache on the Hill 2016
On February 8-9 the Alliance for Headache Disorders Advocacy (AHDA) gathered for its 9th Annual “Headache on the Hill,” (HOH). This is a chance for patients, advocates and even doctors to talk to......
View ArticleJoin me for the Migraine World Summit, April 15-20, 2016!
Last month, a fellow named Carl Cincinnato sent me an email asking if I’d be interested in doing a video interview for the first Migraine World Summit, a first-of-its-kind virtual gathering he... READ...
View ArticleFighting for Migraine – With Words
The words and phrases we use subtly influence how we and others think about the world. This matters a lot for migraine. It is hard to change people’s preconceived, ignorant notions and... READ MORE
View ArticleMigraine Awareness Events
There are many migraine related events coming up that I wanted to share with everyone. From conferences to races to stomping on the Hill. Not everyone will physically be able to make... READ MORE
View ArticleStrategies for Self-Advocacy
Sometimes trying to get other people to understand life with migraine feels like a losing proposition. The cry of exasperation, “No one understands if they don’t have migraine!” is all too common.......
View ArticleThank a Nurse
My 81 year old grandfather recently had his bladder and prostate removed. I had the privilege to stay long hours in the hospital with him, to comfort him and be his advocate.... READ MORE
View ArticleThe Death of an Advocate
I couldn’t stop weeping yesterday. Every new photo, tweet from one of her co-stars, or thoughtful personal statement from a Facebook friend would bring me to fresh tears. Even though I am... READ MORE
View ArticleFumbling Around in the Dark
On November 20, lying in bed on a dreary day with a migraine no medicine had yet vanquished, I sent a text to John, which is often our primary means of communication.... READ MORE
View ArticleReminding Others of the Importance of Self Care
In January, Migraine.com is focusing on #SelfCareAware, a concept that many of us ignore. We are too busy trying to make up for the get togethers, baseball games or work days we... READ MORE
View ArticleDear Doctor, I Have Trust Issues
Dear Doctor, I have trust issues. “Why?” you ask. “Shouldn’t we start out in a trusting relationship?” I wish, but it’s really difficult. Here are the reasons: Misdiagnosis According to the Migraine......
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